Traveling has been a lifelong passion, and I won’t let cystic fibrosis keep me grounded. Here are my seven rules for traveling with CF.

Throughout my life, I experienced small, unexplained health issues that slowly accumulated. It wasn’t until I endured years of chronic pancreatitis that I finally received a diagnosis at 58 years old: ...

Our family has lived with the constant anxiety of managing cystic fibrosis since our daughter’s birth — which made it all the more devastating when she had to stop taking Trikafta due to its impact on ...

This blog discusses substance misuse, abuse, and suicidal ideation. If you or someone you know is struggling with substance misuse, talk with your care team or visit samhsa.gov for support. As a child ...

The Gateway Chapter of the Cystic Fibrosis Foundation welcomes you! Volunteers are the key to our success and the lifeblood of our organization. We have many opportunities for you to get involved.

Dear Chair Cole, Ranking Member DeLauro, Chair Collins, and Vice Chair Murray: As Congress resumes its work on the annual spending bills, the 455 undersigned members of the Ad Hoc Group for Medical ...

Lack of CF awareness, expertise, and health care infrastructure, especially in low- and middle-income countries, may prevent people living with cystic fibrosis from receiving timely and appropriate ...

Being diagnosed with cystic fibrosis-related diabetes shortly after a lung transplant was difficult. But, working with my doctor helped me create a strategy to make it easier. CFRD has a mind of its ...

Getting a diagnosis of any chronic disease later in life is a shock. It can also be a relief to have an explanation for the symptoms you've been experiencing for years. Whatever reaction you have, ...

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