Home health nursing is a noble profession, writes columnist Ari Anderson, who shares what the experience is like in his own ...

ARD-1676 showed promise for SBMA in a study, which found it can break down the AR protein that's faulty in the disorder.

Columnist Kevin Schaefer may talk openly about his life with a disability, but he has many other passions that contribute to ...

A technique to estimate the health of specialized nerve cells may help predict patient response to Zolgensma gene therapy, a ...

Spinraza stabilizes lung function over several years in SMA adults, with initial breathing capacity predicting long-term ...

The FDA has rejected apitegromab as a treatment for spinal muscular atrophy due to issues at a manufacturing facility.

The FDA declined to approve a higher dose of nusinersen – the medication in Biogen’s spinal muscular atrophy treatment ...

Columnist Connie Chandler has an elite team of supermoms who leap into action with love and compassion in her ongoing battle with SMA.

For columnist Jasmine Ramos, who's living with SMA, turning 30 prompted both excitement and uncertainty about the years ahead ...

A spinal muscular atrophy expert at the Muscular Dystrophy Association discusses research breakthroughs and future treatment ...

For columnist Helen Baldwin, being able to care for others — including her late son, Jeffrey — in times of need has been a ...

Columnist Connie Chandler may use a wheelchair, but that doesn't mean she can't enjoy fun activities — a fact that often ...